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Study: TRUSTING Workshops 2022-23 Evaluation
22/01/2024

Roll out and influence on practice of the Talking about Risk, Uncertainties of Testing in Genetics (TRUSTING) educational programme

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Study: PRRS - Patient Roles and Responsibilities Scale
22/01/2024

The Patient Roles and Responsibilities Scale (PRRS): a psychometrically robust and useful tool to measure what matters most to patients

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Study: LORIS
22/01/2024

The challenges of recruiting women with low-risk ductal carcinoma in situ to a randomised controlled trial: the LORIS study experience

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Study: IMPARTER 4
19/01/2024

IMPARTER:4 IMproving PAtient undeRstanding of Gene Expression Profiling Test Results: Phase 4

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Study: LIMBER
19/01/2024

Exploring the support needs of women LIvingwith Metastatic Breast cancER: a qualitative analysis of the LIMBER survey

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Study: LIMBER 2 - They just don't know what to say or do
09/11/2023

Development of an information film for friends & family of patients with MBC "They just don't know what to say or do"

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Study: DIAMOND Phase 1-4
06/12/2022

'Gastrostomy Tube: Is it for Me?' Development and pilot testing of a web-based patient decision aid for people with motor neurone disease considering a gastrostomy tube (DiAMoND Study)

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Study: DIAMOND Phase 1-4
28/11/2022

Development and pilot testing of a web-based decision aid for people with motor neurone disease considering a gastrostomy tube (DiAMoND Study)

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Study: IMPARTER Phase 1
07/12/2021

An intervention to help improve understanding of gene expression profiling tests in breast cancer: Which is best, an information film or leaflet?

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Study: PRAGMATIC
11/11/2021

Patients' experiences of a suppoRtedself-manAGeMentpAThwayIn breast Cancer (PRAGMATIC): 3 month Quality of Life Results

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Study: PRAGMATIC
11/11/2021

Patients' experiences of a suppoRted self-manAGeMent pAThway In breast Cancer (PRAGMATIC)

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Study: REFLECTIONS
11/11/2021

Oncologists and patients believe more training is needed in telehealth and carers and nurses need inclusion

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Study: Nepal womens cancer scoping review (IRP)
01/11/2021

A scoping review to determine levels of knowledge, attitudes and screening practices towards breast and cervical cancer among women in Nepal

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Study: Transgender project (IRP)
01/11/2021

A scoping review of cancer screening in the transgender population: uptake, barriers and healthcare professional knowledge

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Study: TRUSTING Workshops 2020-21 Evaluation
01/04/2021

TRUSTING: The development of a communication program for healthcare professionals talking about risk and uncertainty of testing in genetics

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Study: PRAGMATIC
27/02/2020

Patients' experiences of a suppoRted self-manAGeMent pAThway In breast Cancer (PRAGMATIC)

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Study: PROACT
27/02/2020

Identifying trigger items from the Patient Roles and Responsibilities Scale

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Study: Q-ABC
01/02/2020

Quality of Life After Bladder Cancer

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Study: Related
01/02/2020

Measuring diarrhoea in a cancer setting: the importance of patient-reported tools

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Study: TARGET Workshops - Talking About Risk in the context of Genomic Tests (TARGET)
19/12/2019

Results from a novel education program to help nurses when discussing the Onoctype DX Breast Recurrence Score test with their patients

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Study: POSNOC
06/10/2019

Measuring patient reported outcomes in the POSNOC trial: Strategies employed to promote high quality data return

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Study: TARGET Workshops - Talking About Risk in the context of Genomic Tests (TARGET)
11/04/2019

Talking About Risk in the Context of GEnomicTests (TARGET) Evaluation of an educational programme

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Study: AVALPROFS
04/11/2018

Hoping against hope: Are patients' expectations and understanding about therapeutic aims of novel drugs similar to their oncologists?

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Study: Extreqol
19/10/2018

Patients' and partners' views of treatment and care provided for metastatic castrate resistant prostate cancer (mCRPC) in the UK

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Study: PEPSIN
01/03/2018

PEPSIN Psychobiological Effects of Personalised Supportive INterventions: a feasibility study

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Study: LORIS
05/12/2017

Interviews with women contemplating LORIS trial entry: 2 year feasibility study

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Study: PROACT
01/11/2017

Evaluation of Construct and Structural Validity in the Patient Roles and Responsibilities Scale

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Study: ENDOPREDICT
08/09/2017

Enhanced decision-making about adjuvant chemotherapy in early breast cancer following EndoPredict testing

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Study: CU FITTER
22/06/2017

How to keep active with cancer? Cancer survivors' experiences of a tailored exercise programme CUFITTERTM: results of an explorative survey

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Study: Extreqol
16/06/2017

Survey Results on Managing Metastatic Castrate Resistant Prostate Cancer (mCRPC)

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Study: PulMiCC
01/05/2017

Patients' views on the PulMiCC trial information: Results from a survey

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Study: CU FITTER
16/03/2017

Exercise levels and experiences of those attending CUFITTER a tailored exercise programme for people incancer recovery

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Study: PROACT
01/03/2017

Patient Reported Outcomes in cancer, impact of Age and Carer role demands associated with Treatment (PROACT): The 'lucky' construct

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Study: AVALPROFS
27/01/2017

Assessing the VALue to patients of PROgression Free Survival (AVALPROFS) Quality of Life Results

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Study: PROACT
01/01/2017

Evaluation and validation of the proact measures for cancer patients and informal caregivers

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Study: PrefHer
01/10/2016

Efficacy and safety of subcutaneous trastuzumab and intravenous trastuzumab as part of adjuvant therapy for HER2-positive early breast cancer: Final analysis of the randomised, two-cohort PrefHer study

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Study: PROACT
01/10/2016

Patient Reported Outcomes in Cancer, Impact of Age and Carer Role Demands Associated with Treatment (PROACT): Phase 1 Development of Scale Items

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Study: bWell Videos
09/03/2016

bWell: a mobile application for self-management of arm and shoulder exercises after breast cancer treatment

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Study: PROACT
27/09/2015

Uncertainty about the future for patients with advanced cancer and their informal caregivers: A qualitative view

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Study: PROACT
27/09/2015

Measuring the impact of extended cancer survival on broader aspects of life and well being: The PROACT study

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Study: EXPECT
25/09/2015

Gaps and inconsistencies: Information for men with metastatic castrate resistant prostate cancer (mCRPC)

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Study: PROACT
02/09/2015

Patient reported outcome measures for cancer caregivers: A systematic review

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Study: Chemotherapy and Cognition
18/03/2015

Feasibility study to examine underlying mechanisms for "chemo-cog"

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Study: AVALPROFS
01/01/2014

Assessing the VALue of PROgression Free Survival (AVALPROFS)

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Study: PrefHer
01/09/2013

Reasons for patients' preferences for subcutaneous or intravenous trastuzumab in the PrefHer study

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Study: PrefHer
01/03/2013

PATIENT PREFERENCE FOR SUBCUTANEOUS VERSUS INTRAVENOUS ADJUVANT TRASTUZUMAB: RESULTS OF THE PREFHER STUDY

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Study: Teams Talking Trials
01/01/2010

Communication skills training for breast cancer teams talking about trials

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Study: ALMANAC
03/12/2004

Impact of sentinel node biopsy on quality of life in the ALMANAC trial.

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Study: Communicating about RCTs films
21/05/2004

Efficacy of an Intervention to Improve Communication About Randomised Clinical Trials (RCTs) in Cancer

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LIMBER2 - They just don't know what to say or do

Prof Jenkins with poster at ABC conference

Professor Val Jenkins presenting at the ABC (Advanced Breast Cancer) Conference in Lisbon, November 2023

Knowledge of risk factors and symptoms associated with breast and ovarian cancer among people living in LMICs in Eastern Africa: A scoping review

Helena and Cynthia with poster at HRP conference

Implementing the routine use of patient reported outcome measures in oncology clinical practice to improve patient and clinical outcomes

Sally and Val with poster at HRP conference

Dr Sally Wheelwright and Dr Val Shilling presenting at the Brighton and Sussex Health Research Partnership, October 2023

EMAIL: adminshore-c@sussex.ac.uk PHONE: 01273 873019 TWITTER: https://twitter.com/SussexSHORE_C LOCATION: MAP