Co-Investigator - Prof Dame Lesley Fallowfield
Co-Investigator - Prof Val Jenkins
Researcher - Lucy Matthews
Researcher - Rachel Starkings
Data Manager - Shirley May
Funder: BCRF
Sponsor: Sussex University
TRUSTING Workshops 2020-21 Evaluation
There are calls to offer genetic testing to all patients with breast cancer. Many cancer clinicians and nurses are not experienced in genetic testing and many genetic counsellors are not experienced in oncology. All HCPs nevertheless may be faced with challenging communication about genetic risk with patients and their relatives.
The TRUSTING educational programme was developed to help all HCPs with these difficult conversations. The content of the workshops was developed following literature reviews, interviews with patients and families, geneticists, genetic counsellors, surgeons and oncologists.
Workshop participants followed the on-screen interactions between different HCPs and a fictitious family.
Current Stage:
Closed
Publication
Talking about Risk, UncertaintieS of Testing IN Genetics (TRUSTING): development and evaluation of an educational programme for healthcare professionals about BRCA1 & BRCA2 testing https://doi.org/10.1038/s41416-022-01871-xPublication
A systematic review of communication interventions for healthcare professionals discussing genetic testing in a breast cancer setting https://doi.org/10.1007/s10549-020-05741-zPublication
Using patient perspectives to inform communication training materials for health care professionals discussing BRCA mutation testing https://doi.org/10.1007/s10549-020-05871-4Poster
TRUSTING: The development of a communication program for healthcare professionals talking about risk and uncertainty of testing in genetics posters/Trusting poster.pdf Presented at British Psycosocial Onocology Society (BPOS) conference 2021
EMAIL: adminshore-c@sussex.ac.uk
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