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Co-Investigator - Prof Dame Lesley Fallowfield

Co-Investigator - Prof Val Jenkins

Researcher - Rachel Starkings

Researcher - Lucy Matthews

Data Manager - Shirley May

Funder: BCRF

Sponsor: Sussex University

There are calls to offer genetic testing to all patients with breast cancer. Many cancer clinicians and nurses are not experienced in genetic testing and many genetic counsellors are not experienced in oncology. All HCPs nevertheless may be faced with challenging communication about genetic risk with patients and their relatives.

The TRUSTING educational programme was developed to help all HCPs with these difficult conversations. The content of the workshops was developed following literature reviews, interviews with patients and families, geneticists, genetic counsellors, surgeons and oncologists.

Workshop participants followed the on-screen interactions between different HCPs and a fictitious family.

• Current Stage:

  Closed

• Publication

  A systematic review of communication interventions for healthcare professionals discussing genetic testing in a breast cancer setting https://doi.org/10.1007/s10549-020-05741-z

• Publication

  Using patient perspectives to inform communication training materials for health care professionals discussing BRCA mutation testing https://doi.org/10.1007/s10549-020-05871-4

• Publication

  Talking about Risk, UncertaintieS of Testing IN Genetics (TRUSTING): development and evaluation of an educational programme for healthcare professionals about BRCA1 & BRCA2 testing https://doi.org/10.1038/s41416-022-01871-x

• Poster

  TRUSTING: The development of a communication program for healthcare professionals talking about risk and uncertainty of testing in genetics posters/Trusting poster.pdf
Presented at British Psycosocial Onocology Society (BPOS) conference 2021

EMAIL: adminshore-c@sussex.ac.uk PHONE: 01273 873019 TWITTER: https://twitter.com/SussexSHORE_C LOCATION: MAP