New Article for TRUSTING Published
Professor Valerie Jenkins and colleagues, have published a new article titled 'Roll-out of an educational workshop to improve knowledge and self-confidence of healthcare professionals engaged in mainstreaming of breast cancer genetics'. The paper focuses on improving health care professionals' knowledge, communication and self confidence in breast cancer genetics through the use of TRUSTING (Talking about Risk & uncertainties of Testing in Genetics) educational materials, delivered by skilled facilitators in small group workshops. The article can be found here
News item posted 26/07/2024
Professor Fallowfield at the Secondary Breast Cancer Summit
Professor Dame Lesley Fallowfield and Dr. Val Shilling recently attended the Secondary Breast Cancer Summit in Liverpool, the UK's first national patient-focused conference on metastatic breast cancer. Professor Fallowfield presented 'They Just Don't Know What to Say or Do' based on the LIMBER study, a guide made for family and friends of those living with metastatic breast cancer.
News item posted 12/07/2024
Professor Lesley Fallowfield at Sussex Cancer Research Centre Launch
Professor Dame Lesley Fallowfield recently attended the Sussex Cancer Research Launch at the ACCA and delivered a presentation titled "Measuring what matters most to patients", highlighting the importance of focusing on patient-centered outcomes in cancer research.
News item posted 26/06/2024
Double congratulations to Mrs Starkings!
Our research fellow, Rachel Starkings, has had an exciting few weeks. Not only did she get married at the end of May, she also completed her postgraduate diploma in Psychodynamic Counselling and Psychotherapy, finding out last week that she has passed with a distinction! Many congratulations from us all.
News item posted 25/06/2024
SHORE-C at the UK Oncology Forum
Last week the SHORE-C team attended the UK Oncology Forum in Brighton. Professor Val Jenkins gave a presentation on LIMBER - LIving with Metastatic Breast CanceER - survey results and outputs, including details of 2 information films produced for friends and family (They just don't know what to say or do) and healthcare professionals. Professor Dame Lesley Fallowfield chaired an interactive session on information exchanges between oncologists and their patients, drawing on the results of the LIMBER study.
News item posted 18/06/2024
Professor Val Jenkins at ASCO
Professor Val Jenkins recently attended the annual American Society of Clinical Oncology (ASCO) conference in Chicago. Professor Jenkins presented a poster entitled Talking about Risk, Uncertainties of Testing in Genetics (TRUSTING).
News item posted 14/06/2024
Professor Lesley Fallowfield at ASCO
Professor Dame Lesley Fallowfield recently attended the annual American Society of Clinical Oncology (ASCO) conference in Chicago. Professor Fallowfield presented a poster entitled Improving Patient understanding of GEP Test Results (IMPARTER4) an RCT.
News item posted 14/06/2024
Dr Val Shilling at the RSM
Dr Val Shilling recently gave a talk at the Royal Society of Medicine where she presented early findings from a pilot study looking at the feasibility and acceptability of virtual learning in communication skills training. The pilot study looked specifically at the learning module 'Navigating Angry Conversations', a module developed by Professor Dame Lesley Fallowfield with the RSM and BodySwaps. To read more about this virtual reality training programme for doctors and medical students, see the articles from the University of Sussex and Royal Society of Medicine
News item posted 07/06/2024
Professor Fallowfield at ESMO Berlin
Professor Dame Lesley Fallowfield recently attended ESMO Breast Cancer Annual Congress in Berlin Germany. Professor Fallowfield gave a presentation as part of the Medscape Symposium entitled Living with HER2: Understanding the road to survivorship. The panel led symposium adopted a patient-centered approach in discussing therapeutic strategies for reducing the risk of disease recurrence and brain metastases in patients with HER2+ early breast cancer, the implications of real-world evidence for adjuvant therapy, how to implement optimal care pathways, and the need for diversity in clinical trials.
News item posted 24/05/2024
Professor Fallowfield Interviewed for ITV News
Professor Dame Lesley Fallowfield was recently interviewed by ITV for a news item about the Infected Blood Inquiry. Professor Fallowfield is involved in the inquiry as an expert witness and contributed to the report which explored the communication and psychosocial implications for those affected. The segment is entitled Our last chance at justice, says Portsmouth woman as Blood Inquiry outcome looms and can be viewed here
News item posted 17/05/2024
'I know how to measure difficult things'
Professor Dame Lesley Fallowfield was recently interviewed by Dr Jon Sutton for the British Psychologoical Society magazine The Psychologist. During the interview they discuss her career at the cutting edge of psycho-oncology, improving the experiences of those with cancer by creating new ways to measure difficult things, and forging new paths to help people talk about the disease.
You can read a transcript of the interview hereNews item posted 16/05/2024
POSNOC- 5-year Quality of Life data collection
The POsitive Sentinel NOde: adjuvant therapy alone versus adjuvant therapy plus Clearance or axillary radiotherapy (POSNOC) Study opened in 2014 and is one of the largest international breast surgery trials.
SHORE-C are coordinating the collection of the quality of life data from 1692 breast cancer patients. Participants complete questionnaires measuring, anxiety, general health, and breast cancer related issues when they join the study, at 3 and 6 months and then annually until 3 years.
In April 2024 the study team secured additional funding to collect quality of life data at 5 years. These postal questionnaires will be sent to participants at 5 years after they joined the study.
The patients' responses will provide valuable insight into how modern breast cancer treatments impact on patients' everyday lives and help researchers gain a better understanding of the long-term outcomes of breast cancer treatment.
More information about the POSNOC Study can be found hereNews item posted 15/05/2024