SHORE-C Logo
HOME RESEARCH PUBLIC CONSULTATION PUBLICATIONS WORKSHOPS FILMS APPS TALKS NEWS STAFF CONTACT

Dr Ruth Habibi

Ruth completed her BA in Applied Psychology, MRes in Psychological Research Methods and PhD in Psychology at the University of Sussex. Since then she has worked as a Research Assistant in the department of Health and Social Care at Kingston University and St George's University of London on a series of research projects investigating support services for family carers; a Research Assistant at the Centre for Dementia studies at BSMS on a project investigating quality of life in people with dementia and their carers; and more recently as a Research Coordinator at Surrey and Sussex Healthcare NHS Trust, coordinating delivery of a portfolio of studies at East Surrey Hospital.

Ruth joined SHORE-C in July 2022. She manages the data and documentation of various SHORE-C studies and helps develop the Unit's data infrastructure.

  • REDUCe2

    RCT looking at HRQoL with two kinds of ascetic drains in untreatable cirrhosis patients. The study will compare an alternative intervention, insertion of a palliative tunnelled long-term abdominal drain (Group 1 intervention - LTAD), to standard of care large volume paracentesis (Group 2 intervention - LVP) in the management of refractory ascites.

  • Q-ABC

    The aim of the Q-ABC study is to address the current paucity of information available to patients and clinicians facing treatment decisions where increasingly evidence is showing surgery and radiotherapy can provide equivalent overall survival.

  • PUMMaCE

    This online survey aimed to gather information from people living with multiple myeloma about their understanding of the condition and the words and phrases used to describe their diagnosis, treatment and support. The survey explored what doctors and nurses said or did that helped or hindered understanding, and what family or friends have said or done that was helpful or not so helpful.

    The survey has now closed and the data are being analysed for publication.

  • CANCODE

    In order to develop an educational programme to help communication professionals working with d/Deaf and deaf-blind people (e.g. sign language interpreters) better understand what they may be required to interpret in cancer consultations, we are conducting a survey to find out what communication professionals feel are the biggest challenges when working in cancer consultations.

  • PACiFiC Pilot

    There is interest worldwide about using a drug called a PARP inhibitor (PARPi) in people with BRCA 1 or BRCA 2 gene changes. These drugs already work in patients with cancer who have gene changes. We hope that PARP inhibitors given to those with gene changes who do not have cancer will stop a cancer developing. Before doctors can design a chemoprevention trial using this drug, we need to find out the preferences and acceptability of such a study. Initial insights gained from members of the public - in this instance women - will help with trial design and the sort of information required.

  • Jenkins V, Habibi R, Hall V, Leonard P, Lawn A, Naik J,...Fallowfield L. (2024) Roll-out of an educational workshop to improve knowledge and self-confidence of healthcare professionals engaged in mainstreaming of breast cancer genetics. PLoS ONE 19(7): e0307301. Find it online here 19/07/2024
  • Fallowfield L, Starkings R, Palmieri C, Tait, A, Stephen L, May S, ... & Jenkins V. (2023). Living with metastatic breast cancer (LIMBER): experiences, quality of life, gaps in information, care and support of patients in the UK. Supportive Care in Cancer; 31(8): 459. Find it online here 11/07/2023
ruth
EMAIL: adminshore-c@sussex.ac.uk PHONE: 01273 873019 BlueSky: https://bsky.app/profile/shore-c.bsky.social LOCATION: MAP