Niomie joined SHORE-C in November 2023. As a Research Assistant, she has contributed to quality?of?life research for cancer patients and supported communication workshops for healthcare professionals, including TRUSTING, TARGET2, and HEARSAY.
In order to develop an educational programme to help communication professionals working with d/Deaf and deaf-blind people (e.g. sign language interpreters) better understand what they may be required to interpret in cancer consultations, we are conducting a survey to find out what communication professionals feel are the biggest challenges when working in cancer consultations.
There is interest worldwide about using a drug called a PARP inhibitor (PARPi) in people with BRCA 1 or BRCA 2 gene changes. These drugs already work in patients with cancer who have gene changes. We hope that PARP inhibitors given to those with gene changes who do not have cancer will stop a cancer developing. Before doctors can design a chemoprevention trial using this drug, we need to find out the preferences and acceptability of such a study. Initial insights gained from members of the public - in this instance women - will help with trial design and the sort of information required.
We have adapted the one-day face to face HEARSAY workshop to help Healthcare Professionals improve their communication with patients who have metastatic breast cancer into an e-Learning course. We shall compare the e-Learning results (n=60 HCPs) with those from the face to face courses for equivalence, with the aim of providing it as an educational resource to the Royal Colleges.