Senior Data Manager
Email: S.F.May@sussex.ac.uk
Tel (UK): 01273 873032
Tel (International) +44 1273 873032
Shirley May
Shirley did a BA in Philosophy at the University of Sussex. After completing her degree she worked locally in the voluntary sector and at the University. She then moved to Barcelona to teach English. Returning after six years, she completed an MSc in Information Systems and set up as a freelance database and software programmer working in the business and voluntary sectors.
Shirley joined SHORE-C in June 2014 to develop the Unit's data management infrastructure, its online data collection and the website. As well as database development, web programming, and data analysis, she manages the quality and security of SHORE-C's data, and ensures good practice in study data management.
- REDUCe2
RCT looking at HRQoL with two kinds of ascetic drains in untreatable cirrhosis patients. The study will compare an alternative intervention, insertion of a palliative tunnelled long-term abdominal drain (Group 1 intervention - LTAD), to standard of care large volume paracentesis (Group 2 intervention - LVP) in the management of refractory ascites.
- IMPARTER 4
Examines whether a short (8 min) film about Gene Expression Profiling (GEP) tests used in breast cancer (Oncotype DX® or Prosigna) helps improve patients‘ knowledge.
- LORIS
A phase III trial of surgery versus active monitoring for Low Risk DCIS (LORIS), incorporating a two year feasibility study. The aim of the main trial is to determine whether women with newly diagnosed low risk DCIS can safely avoid surgery, without detriment to their psychological well-being and can those patients who do require surgery be identified by pathological and radiological criteria.
- POSNOC
A randomised controlled trial of axillary treatment in women with early stage breast cancer who have metastases in one or two sentinel nodes. The aim of this trial is to determine whether axillary clearance or radiotherapy can be safely avoided in women receiving chemotherapy and/or hormone therapy following surgery for early stage breast cancer. The trial also explores how aspects of QoL and psychological well-being are affected by fear of cancer recurrence and long term side effects of axillary treatment.
- Q-ABC
The aim of the Q-ABC study is to address the current paucity of information available to patients and clinicians facing treatment decisions where increasingly evidence is showing surgery and radiotherapy can provide equivalent overall survival.
- CHANGES
Development and preliminary evaluation of a web based intervention for people with cancer and unintentional weight loss and their informal carers.
- Jenkins V, Starkings R, Teoh M, May S, Bloomfield D, Zammit C, ... & Matthews L. (2023). Patients' views and experiences on the supported self-management/patient-initiated follow up pathway for breast cancer. Supportive Care in Cancer; 31(12): 658. Find it online here 27/10/2023
- Wheelwright S, Matthews L, Jenkins V, May S, Rea D, Fairbrother P, Gaunt C, Young J, Pirrie S, Wallis M G, Fallowfield L, on behalf of the LORIS Trial Management Group (2023). Recruiting women with ductal carcinoma in situ to a randomised controlled trial: lessons from the LORIS study. Trials; 24(1): 670. Find it online here 14/10/2023
- Jenkins V, Matthews L, Solis-Trapala I, Gage H, May S, Williams P, ... & Teoh M. (2023). Patients' experiences of a suppoRted self-manAGeMent pAThway In breast Cancer (PRAGMATIC): quality of life and service use results. Supportive Care in Cancer; 31: 570 Find it online here 12/09/2023
- Fallowfield L, Starkings R, Palmieri C, Tait, A, Stephen L, May S, ... & Jenkins V. (2023). Living with metastatic breast cancer (LIMBER): experiences, quality of life, gaps in information, care and support of patients in the UK. Supportive Care in Cancer; 31(8): 459. Find it online here 11/07/2023
- Fallowfield L, Solis-Trapala I, Starkings R, May S, Matthews L, Eccles D, ... & Jenkins V. (2022). Talking about Risk, UncertaintieS of Testing IN Genetics (TRUSTING): development and evaluation of an educational programme for healthcare professionals about BRCA1 & BRCA2 testing. British Journal of Cancer; 127(6): 1116-1122. Find it online here 17/06/2022
- Fallowfield L J, Farewell D, Jones H, May S, Catt S, Starkings R, & Jenkins V. (2022). IMPARTER, Phase 1 of an intervention to improve patients' understanding of gene expression profiling tests in breast cancer. Breast Cancer Research and Treatment; 192: 265-271. Find it online here 04/01/2022
- Fallowfield L, May S, & Jenkins V. (2020). Communicating the oncotype DX® test results: A novel educational workshop for specialist breast care nurses. European Journal of Oncology Nursing; 49: 101843 Find it online here 30/09/2020
- Harder H, Shilling V M, May S F, Cella D, Schmid P, & Fallowfield L J. (2020). The development and initial evaluation of the Diarrhoea Management Diary (DMD) in patients with metastatic breast cancer. Breast Cancer Research and Treatment; 183: 629-638. Find it online here 27/07/2020
- Catt S, Matthews L, May S, Payne H, Mason M, & Jenkins V. (2019). Patients' and partners' views of care and treatment provided for metastatic castrate-resistant prostate cancer in the UK. European Journal of Cancer Care; 28(6): e13140. Find it online here 01/09/2019
- Fallowfield L, Solis-Trapala I, Starkings R, Catt S, May S, & Jenkins V. (2019). Talking about risk in the context of genomic tests (TARGET): development and evaluation of an educational program for clinicians. Breast Cancer Research and Treatment; 177: 641-649. Find it online here 14/06/2019
