The central aim of Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) is to conduct pragmatic research in psychosocial oncology. Our work includes:
Measuring Quality of Life (QoL) in clinical trials of cancer therapy
Designing Patient Reported Outcome (PRO) measures
Developing and evaluating interventions to help patients deal with treatment side-effects
Producing educational materials and helping to improve communication skills of Cancer Healthcare Professionals
"Talking about risk in the context of genomic tests (TARGET): development and evaluation of an educational program for clinicians " Breast Cancer Research and Treatment
"Development and validation of the caregiver roles and responsibilities scale in cancer caregivers " Quality of Life Research
"Effects of Neratinib on Health-Related Quality-of-Life in Women with HER2-Positive Early-Stage Breast Cancer: Longitudinal Analyses from the Randomized Phase III ExteNET Trial " Annals of Oncology, Oxford University Press
"Efficient development and usability testing of decision support interventions for older women with breast cancer " Patient Preference and Adherence, Dove Press
"The cost-effectiveness of EndoPredict to inform adjuvant chemotherapy decisions in early breast cancer " Health Policy and Technology
"Treatment experiences, information needs, pain and quality of life in men with metastatic castrate-resistant prostate cancer: results from the EXTREQOL study " Clinical Oncology
"Quality of life assessment using patient reported outcome (PRO) measures - still a Cinderella outcome? Published in Annals of Oncology by Oxford University Press.Download the pdf
"Development and validation of the patient roles and responsibilities scale in cancer patients " Quality of Life Research
"Do drugs offering only PFS maintain quality of life sufficiently from a patient’s perspective? Results from AVALPROFS (Assessing the ‘VALue’ to patients of PROgression Free Survival) study " Supportive Care in Cancer
"Psychological Issues in Breast Cancer" in The Sixth Edition of The Companion to Specialist Surgery published by Elsevier
"RAZOR: A phase II open randomized trial of screening plus goserelin and raloxifene versus screening alone in premenopausal women at increased risk of breast cancer " Cancer Epidemiology Biomarkers and Prevention
"Quality of life and communication in orthognathic treatment" Journal of Orthodontics
"Cancer survivors’ experiences of a community-based cancer-specific exercise programme: results of an exploratory survey" Supportive Care in Cancer
"Enhancing decision-making about adjuvant chemotherapy in early breast cancer following EndoPredict testing" published by Psycho-Oncology
"EXTREQOL Identifies Ongoing Challenges in Maximising Quality of Survival in Men with Metastatic Castrate-Resistant Prostate Cancer" published by Clinical Oncology
“Patient-Centred Decision Making: Communication Challenges” Chapter 4 in Problem Solving in Patient-Centred and Integrated Cancer Care published by EBN Health Books
"Efficacy and safety of subcutaneous trastuzumab and intravenous trastuzumab as part of adjuvant therapy for HER2-positive early breast cancer: final analysis of the randomised, two-cohort PrefHer study" European Journal of Cancer
"Quality of Survival: a new concept framework to assess the quality of prolonged life in cancer" Expert Review of Quality of Life in Cancer Care
"Self-reported sexual health: Breast cancer survivors compared to women from the general population – an observational study" BioMed Central
"The Cost-effectiveness of Screening for Ovarian Cancer: Results from the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS)" The British Journal of Cancer
"A new paradigm or a misrepresentation of current communication research and teaching." Letter to the Editor of Medical Education
"A user-centred approach to developing bWell, a mobile app for arm and shoulder exercises after breast cancer treatment." Journal of Cancer Survivorship
"The pervasive nature of uncertainty—a qualitative study of patients with advanced cancer and their informal caregivers." Journal of Cancer Survivorship
"Switching between intravenous and subcutaneous trastuzumab: Safety results from the PrefHer trial". The Breast
"Long-Term Follow-Up of the Intergroup Exemestane Study." Journal of Clinical Oncology
"The effect of ovarian cancer screening on sexual activity and functioning: results from the UK collaborative trial of ovarian cancer screening RCT" in British Journal of Cancer (restricted access/subscription required).
Chapter 18 “The Effects of Breast Cancer Treatments on Cognition” in Alistair Ring & Marina Parton (Eds) Breast Cancer Survivorship Springer
Too hot, too cold or can we get it just right? What emotional distance should oncologists keep from their patients? Read more
Patient-reported outcome measures of the impact of cancer on patients’ everyday lives: a systematic review. Read more
Confusion Over Differences in Registration and Randomization Criteria for the LORIS (Low-Risk DCIS) Trial. Read more
3rd ESO-ESMO international consensus guidelines for Advanced Breast Cancer (ABC3). Simultaneously published in Annals of Oncology and The Breast. Read more
Final results of the TANIA randomised phase III trial of bevacizumab after progression on first-line bevacizumab therapy for HER2-negative locally recurrent/metastatic breast cancer. Read more
Sexual dysfunction in breast cancer survivors: cross-cultural adaptation of the Sexual Activity Questionnaire for use in Portugal. Read more
Congratulations to Lucy Matthews, our Clinical Trials Coordinator, who obtained her level II certificate in counselling studies this month.
Breast Cancer Research Foundation fund two new films for SHORE-C
We have been busy filming two new scenarios to add to our Breast Cancer Research Foundation funded TARGET (Talking about Risk in the Context of Genomic Tests) educational program for clinicians working in breast cancer. The scenarios deal with giving risk of recurrence results using Prosigna - a genomic test that was recently approved by the National Institute for Health and Care Excellence. The production was funded by Nanostring; one scenario starred Dr Marina Parton from the Royal Marsden Hospital (pictured with Lesley and the actors), and the other featured Dr Judy King from the Royal Free Hospital, London.
TARGET paper - Talking about risk in the context of genomic tests (TARGET): development and evaluation of an educational program for clinicians published and online
The paper, with results from the seven TARGET workshops held over the past year, has been accepted by Breast Cancer Research and Treatment. Thanks to all the clinicians who attended. You can read the paper here.
Academy of Medical Science DEPARTURE LOUNGE
Dame Lesley was interviewed on Radio Five Live by Adrian Chiles last week about death and dying and the Academy of Medical Science project, The Departure Lounge. You can find the innovative public engagement space in Lewisham Shopping Centre. Two of our researchers, Rachel Starkings and Dr Susan Catt, were facilitators, spending two days each there last week and over the weekend. The Academy of Medical Sciences want to demystify death and it was designed to encourage conversations about death and tackle some of the taboos around dying.
ESO Umberto Veronesi Memorial Award
Dame Lesley was awarded the Umberto Veronesi Foundation prize at this year's St Gallen International Breast Cancer Conference, which took place in Vienna on 20-23 March. Prof Veronesi, who died in 2016 aged 90, contributed enormously to the research showing that all women with breast cancer did not necessarily need to have a mastectomy. Dame Lesley was given the award in recognition of her leading role in advancing science and care of breast cancer patients.
Commenting on the award, she said: "I am absolutely thrilled and immensely proud that the Awards Committee have nominated me, a psycho-oncologist rather than a surgeon, for this prestigious award. I knew Prof Veronesi well and he was always very kind and encouraging to me in the early stages of my career. I am sure that the title of my talk 'How heretical thoughts and challenging orthodoxy improves breast cancer care' which epitomised his own private and professional life, would make him smile.EXTREQOL study.
New mentoring lead for BSMS
The BSMS Inclusivity Team is delighed that Dr Val Shilling has taken on the role of mentoring working group lead. Dr Shilling replaces Dr Sara Balouch, who started a new position at BPP University in January. Dr Shilling brings a wealth of experience to the role having been both a mentee and mentor in the scheme.
Welcome to our new member of staff, Elizabeth Renvoize!
Beth joins us as Department Assistant. Good luck to her and all for 2019!
New illustrated eBook: Communicating with people newly diagnosed with cancer
Available to download from the Apple iTunes store, for iPad, iPhone or Mac. Inspired by his experiences with cancer for over 30 years, Bruce Gilligan considers the most effecive ways to communicate with newly diagnosed cancer patients.
Elizabeth Hurley at SHORE-C
Elizabeth Hurley takes part in research into breast cancer treatment
The research is being carried out by Dame Lesley Fallowfield, Professor of Psycho-oncology at Brighton and Sussex Medical School, in partnership with Dr Melanie Flint, reader in cancer biology at the University of Brighton.
Elizabeth Hurley has taken part in research exploring the benefits of yoga, exercise and mindfulness on those being treated for breast cancer. See our bWell app for exercises after breast cancer, which you can download from the App Store.
The actress, 53, hailed the work as “ground-breaking” during a visit to the laboratory at Brighton and Sussex Medical School, where the team is exploring whether stress reduction techniques can increase the effectiveness of chemotherapy for those with breast cancer. Hurley, the global ambassador for Estee Lauder’s Pink Ribbon breast cancer awareness campaign, had her saliva tested to measure levels of the hormone cortisol, which indicates stress.
'Problem Solving in Person-Centred and Integrated Cancer Care' is the BMA Oncology Book of the Year!
Against significant competition from some excellent titles, ours was chosen as the best in category. The ACP series in oncology from EBN Health has won the award for the last three years which is a great achievement for all authors and editors. You can see the titles at www.ebnhealth.com.
Please email Duncan Enright, Managing Director, ebn health, for a copy of the book or more information
Talking about Risk and UncertaintieS of Testing IN Genetics (TRUSTING)
Professor Dame Lesley Fallowfield has been awarded a grant from the prestigious Breast Cancer Research Foundation in the US to develop a communication skills programme to help HCPs discuss germline mutations in breast cancer, and the management options available to patients.
Professor Val Jenkins and the Dame busy making a new patient information film with Prof Denis Talbot, Consultant medical oncologist at Oxford.
ECP Video - a great film production team!