The central aim of Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) is to conduct pragmatic research in psychosocial oncology. Our work includes:
Measuring Quality of Life (QoL) in clinical trials of cancer therapy
Designing Patient Reported Outcome (PRO) measures
Developing and evaluating interventions to help patients deal with treatment side-effects
Producing educational materials and helping to improve communication skills of Cancer Healthcare Professionals
"Communicating the oncotype DX® test results: A novel educational workshop for specialist breast care nurses " European Journal of Oncology Nursing, Letter to the Editor, First published online October 2010 for Volume 49, December 2020 Issue
"Pulmonary metastasectomy in colorectal cancer: health utility scored by EQ-5D-3L in a randomized controlled trial show no benefit from lung metastasectomy " Colorectal Disease, Open Access Article, Published online 01 October 2020
"The management of hot flushes for men treated with androgen deprivation therapy for prostate cancer: a survey of UK practice " Acupuncture in Medicine, Letter, Published online 07 October 2020
"5th ESO-ESMO international consensus guidelines for advanced breast cancer (ABC 5) " Annals of Oncology, Special Article, Published online 23 September 2020
"From Subject to Fellow Researcher: Reconceptualising Research Relationships to Safeguard Potentially Vulnerable Survey Participants " The American Journal of Bioethics, Published online 18 September 2020
"Using patient perspectives to inform communication training materials for health care professionals discussing BRCA mutation testing " Breast Cancer Research and Treatment, Open Access article, First published online August 2020
"The development and initial evaluation of the Diarrhoea Management Diary (DMD) in patients with metastatic breast cancer " Breast Cancer Research and Treatment, Open Access article, First published online July 2020
"Ovarian cancer symptoms, routes to diagnosis and survival – Population cohort study in the ‘no screen’ arm of the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS) " Gynecologic Oncology, Open Access article, First published online June 2020
"A systematic review of communication interventions to help healthcare professionals discuss genetic testing for breast cancer " Breast Cancer Research and Treatment, Open Access article, 23 June 2020
"The myth of pulmonary metastasectomy " British Journal of Cancer, Short communication, 16 June 2020
"Rapid response to: Colorectal cancer: summary of NICE guidance " The BMJ, Letter to the Editor, 12 June 2020
"Digital health for optimal supportive care in oncology: benefits, limits, and future perspectives " Supportive Care in Cancer Open Access article, 12 June 2020
"The affect of goserelin on the QoL of women having chemotherapy for EBC: Results from the OPTION trial " The Breast Open Access article first published online May 2020
"Pulmonary Metastasectomy versus Continued Active Monitoring in Colorectal Cancer (PulMiCC): a multicentre randomised clinical trial " Trials Open Access article first published online 12 December 2019
"Understanding of prognosis in non-metastatic prostate cancer: a randomised comparative study of clinician estimates measured against the PREDICT prostate prognostic model " British Journal of Cancer 16 September 2019
"Insights into the use of social comparisons within an advanced cancer setting " Journal of Psychosocial Oncology Research and Practice - online version ahead of print
"Patients' and partners' views of care and treatment provided for metastatic castrate-resistant prostate cancer in the UK " European Journal of Cancer Care - online version before inclusion in an issue
"Sexual functioning in 4,418 postmenopausal women participating in UKCTOCS: a qualitative free-text analysis " Menopause
"Talking about risk in the context of genomic tests (TARGET): development and evaluation of an educational program for clinicians " Breast Cancer Research and Treatment
"Development and validation of the caregiver roles and responsibilities scale in cancer caregivers " Quality of Life Research
"Effects of Neratinib on Health-Related Quality-of-Life in Women with HER2-Positive Early-Stage Breast Cancer: Longitudinal Analyses from the Randomized Phase III ExteNET Trial " Annals of Oncology, Oxford University Press
"Efficient development and usability testing of decision support interventions for older women with breast cancer " Patient Preference and Adherence, Dove Press
Remote consultations for cancer patients to be evaluated
The COVID-19 pandemic has rapidly ushered in changes to the cancer consultation experience for patients and clinicians. To accommodate social distancing, the traditional way of meeting in person in a clinic room is now the exception, with most discussions conducted by telephone or video-link, commonly referred to as ‘remote consultation’. For both parties this means new ways of communicating and interacting.
SHORE-C is carrying out a service evaluation of remote consultations, led by Dr Sue Catt with collaboration from clinical colleagues (Dr Richard Simcock and Dr Leroy Okonta), and called REFLECTIONS (REmote Follow-up consultations: Lessons and Experiences during Covid-19 Time In ONcology Services).
The REFLECTIONS evaluation aims to highlight the benefits and challenges of remote consultations from the perspectives of oncologists and their patients. Over the next six months, one-off interviews, lasting about 45 minutes, will be conducted with a sample of patients treated by the Sussex Cancer Centre and consultants who work there. Ethical approval is in place, recruitment opened this week and the first few patients approached have expressed interest in participating.
Dr Catt said: "The findings of our evaluation will be used to identify areas that could be improved and positive elements that may be capitalised on to ensure consultations in the future get maximum benefit from alternative ways of working." (article from InPulse, BSMS internal weekly newsletter, issue 219, 09 October 2010)
Dame Lesley has been made an Ambassador for the Martlets Hospice in Hove
Dame Lesley has been made an Ambassador for the Martlets Hospice in Hove. Commenting on the appointment, she says: "I have always been an enormous admirer and supporter of the hospice movement having been encouraged as a young researcher by Dame Cicely Saunders herself who started the hospice movement in the UK. I was then really privileged to work with Professor Colin Murray-Parkes at the Royal London Hospital who did pioneering research at St Christopher's Hospice on loss and bereavement. Few people realise that hospices get very little of their funding from the NHS and are dependent on the generosity of the general public. The COVID pandemic has led to huge financial difficulties for the Martlets and other hospices with the cancellation of fun runs, marathons, closure of charity shops and other events such as the Halloween Ball. Along with my other illustrious Ambassadors I hope that we can work with the fundraising team to ensure that the vital amazing work of our local hospice can continue."
Certificate in Counselling Studies for Lucy
Lucy Matthews, our Clinical Trials Coordinator, has passed her Level 3 Certificate in Counselling Studies. Lucy will now begin a part-time Postgraduate Diploma in Psychodynamic Psychotherapeutic Counselling at the University of Brighton.
Falmer Magazine features the work of Professor Dame Lesley Fallowfield and SHORE-C.
"Ensuring that people aren't fatigued, depressed or feeling sick shouldn't be a luxurious add-on." Read the article here
Rachel appointed as media representative for BPOSRachel Starkings, Research Fellow here at SHORE-C, has been appointed as a media representative to the British Psychosocial Oncology Society (BPOS) executive committee. This is a three-year appointment and she'll be sharing the role with Dr David Wright, a Senior Research Fellow at the Macmillan Survivorship Research Group. The committee is always looking for new ways to engage people so Rachel hopes this will be an exciting challenge. Find out more about the committee here. (article from inPulse - BSMS internal e-newsletter - Issue 207 - 26 June 2020)
British Psychosocial Oncology Society (BPOS) Conference, Edinburgh 2020Professor Fallowfield gave a talk on 'Helping nurses discuss risk and uncertainty about chemotherapy with early breeast cancer (EBC) patients: results from novel educational workshops'
Several SHORE-C researchers attended the BPOS conference in Edinburgh where they all presented posters about our current research.
Talking about Risk, UncertaintieS of Testing IN Genetics
Professors Lesley Fallowfield and Valerie Jenkins are running a series of TRUSTING Workshops from April to July this year
These residential workshops last 8 hours split over 2 half days and attract 9 cPD points. Courses are funded via a BCRF research grant and are free of charge, including accommodation and rasonable travel expenses. Click here for more information about the TRUSTING study.
Professor Valerie Jenkins Inaugural Lecture
More than 170 people attended, including colleagues from SHORE-C and local sixth form students. Prof Jenkins presented her research in communicating about clinical trials, studies exploring the phenomenon of 'brain fog' and reflected on her career in psycho-oncology. The lecture was introduced by Prof Debra Humphris (above left), Vice-Chancellor at the University of Brighton, and concluded by Prof Malcolm Reed (right), Dean at BSMS.
Professor Valerie Jenkins Inaugural Lecture, Wednesday November 13