Welcome to Sussex Health Outcomes
Research & Education in Cancer
 

Research PublicationsFilms

The central aim of Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) is to conduct pragmatic research in psychosocial oncology. Our work includes:

  1. Measuring Quality of Life (QoL) in clinical trials of cancer therapy

  2. Designing Patient Reported Outcome (PRO) measures

  3. Developing and evaluating interventions to help patients deal with treatment side-effects

  4. Producing educational materials and helping to improve communication skills of Cancer Healthcare Professionals

Trusting workshops 2022

NEWS

First Prize at BAPEN!

Dr Sally Wheelwright, Senior Researcher at SHORE-C, won best poster for the DiAMonD decision aid study at BAPEN2022 in Brighton, UK. The DiAMonD decision aid helps people with motor neuron disease choose whether to have a gastronomy tube fitted. View the poster here. View the DiAMoND study page here

Research study on user acceptability of home-testing kit for saliva cortisol measurement

Have you completed chemotherapy treatment for breast cancer? The University of Brighton, SHORE-C and Mint diagnostics would like your feedback on a prototype that measures stress hormones in saliva. Click on the link for more information and see how you can take part

ESMO Eiffel Tower

SHORE-C at ESMO Congress Paris 2022

Members of SHORE-C (Lesley Fallowfield, Val Jenkins and Lucy Matthews) presented results from some of their research studies at the European School of Medical Oncology (ESMO) conference in Paris (9th-13th September). The highlight was Dame Lesley in conversation half way up the Eiffel Tower! The session on Patient Centricity was hosted by Medscape Oncology. Tres Bon!

BCRF Award

BCRF logo

Professor Dame Lesley Fallowfield has received another 12 month grant of over $225,000 from the Breast Cancer Research Foundation (the biggest Breast Cancer Charity in the US) to continue SHORE-C’s work producing interventions aimed at improving HCPs’ skills and patient understanding of genomics and genetics in breast cancer. Last year Dame Lesley won the BCRF’s most prestigious honour (the Jill Rose Award) but due to COVID was unable to fly to New York to receive it however she will be going there this October to their annual Symposium.

LUCY EARNS DISTINCTION

Lucy Matthews

Lucy Matthews, Clinical Trials Coordinator at SHORE-C, has recently completed a post graduate diploma in Psychodynamic counselling and graduated with a distinction! Lucy will continue on her counselling journey by working at a local agency one day a week alongside her work at SHORE-C. Congratulations to Lucy for all her skill and hard work!

RESEARCH WITH IMPACT DAY

presentation of award for best stall

Interim Vice-Chancellor David Maguire and Pro-Vice-Chancellor (Research and Enterprise) Keith Jones present a certificate to Doctor Helena Harder for the best stall at the University of Sussex Research with Impact Day, June 2022.

Two of our senior researchers, Doctors Helena Harder and Sally Wheelwright, at the stall at the University of Sussex Research with Impact Day, June 2022.

POSNOC at SHORE-C - meet some of the team and see how we collect and manage the study's quality of life data

POSNOC is a randomised controlled trial of axillary treatment in women with early stage breast cancer who have metastases in one or two sentinel nodes. Read more about the trial here

Counselling Studies for Rachel

Congratulations to our researcher, Rachel Starkings, who has passed her Level 2 Certificate in Counselling Studies and will now begin a part-time Postgraduate Diploma in Psychodynamic Psychotherapeutic Counselling at the University of Brighton.

We are expanding ...

We have two new staff members at SHORE-C. Senior Research Fellow Dr Stephanie Russ and Departmental Assistant Holly Cowlan have now joined us. A very warm welcome to both!

Long Service Awards

Professor Dame Lesley Fallowfield and Professor Val Jenkins attended the recent ‘Long Service Awards 2021’ lunch that took place on Thursday 11 November 2021 at the University of Sussex. They each received a long service award for 20 years of research at the university.

Professor Val Jenkins presents PRAGMATIC preliminary results at the NCRI Virtual Festival (November 2021)

NCRI festival graphic

Professor Jenkins' talk in the 'Focus on breast cancer' session describes the baseline and 3 month results of our study investigating 'Patients' experiences of a supported self-managment pathway in breast cancer' at 3 hospitals in the south east of the UK.

See our NCRI e-posters:

Advanced Breast Cancer Sixth International Consensus Conference (ABC6)

This major international conference is a forum for sharing best clinical practices and the latest scientific updates in the field. Its main goal is to continue to improve outcomes for all patients with advanced breast cancer. Professor Fallowfield chaired and took part in the life Q&A session 'Who's caring for the carers?' and was a panelist for the consensus session on Saturday 6th November.

Professor Dame Lesley Fallowfield receives Highest Scientific Award from Major US Cancer Research Funder

Professor Dame Lesley Fallowfield has been awarded the Breast Cancer Research Foundation’s (BCRF’s) highest scientific award. US-based BCRF is the largest private funder of breast cancer research in the world and provides critical funding to fuel advances in tumour biology, genetics, prevention, treatment, metastasis, and survivorship. Prof Fallowfield has been a BCRF Investigator since 2016. At the organisation’s annual Virtual Symposium and Awards Luncheon on 14 October, Prof Fallowfield was awarded the Jill Rose Award for Scientific Excellence in recognition of her work on developing educational programmes to help healthcare professionals discussing complex test results and treatment options with patients with breast cancer. View her acceptance speech below: And here is a link to the Brighton and Sussex Medical School article with more information about the award.

Recognition of UKCTOCS Team

The main UKCTOCS paper, for which Professor Dame Lesley Fallowfield is an author, has been chosen as the most impactful publication to the field of women's cancer during the year 2020-2021 by The Columbia Hospital For Women’s Research Foundation. The paper is titled 'Ovarian cancer population screening and mortality after long-term follow-up in the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS): a randomised controlled trial' has been chosen as the most impactful publication to the field of women's cancer during the year 2020-2021 by The Columbia Hospital For Women’s Research Foundation. The foundation will donate $5,000 to the Eve Appeal in honour of the authors.

A huge welcome to our new Senior Research Fellow, Sally Wheelwright!

Dr Sally Wheelwright

Dr Wheelwright's research interests centre round supporting self-management of nutritional care in people with cancer and long term conditions, along with quality of life assessment, health literacy and developing digital interventions. Read more about Dr Wheelwright's background and research here.

BCRF podcast with Professor Dame Lesley Fallowfield

Prof Fallowfield discusses improving communication between healthcare professionals and patients to empower women to make informed decisions after diagnoses on the latest Breast Cancer Research Foundation (BCRF) podcast, 'Investigating Breast Cancer'. Listen to the podcast.

Professor Dame Lesley Fallowfield In Conversation at the RSM

Prof Dame Lesley Fallowfield

Recorded on Wednesday 21 April 2021 as part of The Royal Society of Medicine's In Conversation Live series, Professor Dame Lesley Fallowfield DBE, Director of Sussex Health Outcomes Research & Education in Cancer (SHORE-C), and Professor of Psycho-Oncology, joined Professor Roger Kirby, RSM President, for a fascinating discussion about her successful career, how her principal research contributions have enabled the measurement of quality of life via clinical treatment trials, how psycho-oncology and improving communication skills of medical professionals can vastly help cancer patients and her view on the oncology provisions for patients during the COVID-19 pandemic.

 

More news ...

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LATEST PUBLICATIONS

NEW: "A digital pathway for genetic testing in UK NHS patients with cancer: BRCA-DIRECT randomised study internal pilot " Journal of Medical Genetics Published 22 July 2022

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NEW: "Talking about Risk, UncertaintieS of Testing IN Genetics (TRUSTING): development and evaluation of an educational programme for healthcare professionals about BRCA1 & BRCA2 testing " British Journal of Cancer Published 17 June 2022

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"The role of patient-reported outcome measures in the continuum of cancer clinical care: ESMO Clinical Practice Guideline " Annals of Oncology Published 21 April 2022

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"Health-related quality of life in patients with COVID-19; international development of a patient-reported outcome measure " Journal of Patient-Reported Outcomes Published 26 March 2022

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"Developing Cancer Quality of Life Assessment Tools " Handbook of Quality of Life in Cancer Book Chapter, Published 26 March 2022

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"Modifiable pre-treatment factors are associated with quality of life in women with gynaecological cancers at diagnosis and one year later: Results from the HORIZONS UK national cohort study " Gynecologic Oncology Published 26 March 2022

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"A fascinating time to be involved with research’ Exploring the impact of COVID-19 on postgraduate psycho-oncology researchers " Psycho-Oncology Published 19 January 2022

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"IMPARTER, Phase 1 of an intervention to improve patients’ understanding of gene expression profiling tests in breast cancer " Breast Cancer Research and Treatment Published 04 January 2022

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"Knowledge, awareness, attitudes and screening practices towards breast and cervical cancer among women in Nepal: a scoping review " Journal of Public Health Published 22 December 2021

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POSNOC Protocol Publication

"POSNOC—POsitive Sentinel NOde: adjuvant therapy alone versus adjuvant therapy plus Clearance or axillary radiotherapy: a randomised controlled trial of axillary treatment in women with early-stage breast cancer who have metastases in one or two sentinel nodes " BMJ Open Accepted for publication 03 November 2021

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"Clinical Impact of the Predict Prostate Risk Communication Tool in Men Newly Diagnosed with Nonmetastatic Prostate Cancer: A Multicentre Randomised Controlled Trial " European Urology Published online 04 September 2021

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"The Prospective Observational Cohort and the Nested Randomized Controlled Trial in the Pulmonary Metastasectomy in Colorectal Cancer (PulMiCC Study) Question the Reliance on Existing Evidence for the Magnitude of Benefit From Lung Metastasectomy " American Journal of Clinical Oncology Published 01 September 2021

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"Pulmonary Metastasectomy in Colorectal Cancer burden of care study: analysis of local treatments for lung metastases and systemic chemotherapy in 220 patients in the PulMiCC cohort " Colorectal Disease Published online 26 June 2021

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"Gaps in Care and Support for Patients With Advanced Breast Cancer: A Report From the Advanced Breast Cancer Global Alliance " JCO Global Oncology Published online 22 June 2021

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"Preference for the fixed-dose combination of pertuzumab and trastuzumab for subcutaneous injection in patients with HER2-positive early breast cancer (PHranceSCa): A randomised, open-label phase II study " European Journal of Cancer Published 16 June 2021

Link to European Journal of Cancer article

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Ovarian cancer population screening and mortality after long-term follow-up in the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS): a randomised controlled trial

A large-scale randomised trial of annual screening for ovarian cancer did not succeed in reducing deaths from the disease, despite one of the screening methods tested detecting cancers earlier. The results of the trial have now been published in The Lancet 12 May 2021.

SHORE-C worked on the psychosocial aspects of the trial over the past 20 years, carrying out psychosocial assessments on more than 187,000 women. Read the press releases from UCL and BSMS.

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"A structured review of quality of life in advanced and high‐risk cutaneous squamous cell carcinoma shows the need for more studies and better measures " Skin Health and Disease Published 07 May 2021

"The Pulmonary Metastasectomy in Colorectal Cancer cohort study: Analysis of case selection, risk factors and survival in a prospective observational study of 512 patients " Colorectal Disease Published 30 March 2021

"The management of sexual dysfunction resulting from radiotherapy and androgen deprivation therapy to treat prostate cancer: A comparison of uro‐oncology practice according to disease stage " International Journal of Clinical Practice Published online 19 March 2021

"Performance Characteristics of the Ultrasound Strategy during Incidence Screening in the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS) " Cancers 2021, Special Issue Gynaecological Cancers Risk: Breast Cancer, Ovarian Cancer and Endometrial Cancer, Published 18 February 2021

"An online review of informational sources for advanced or high-risk cutaneous squamous cell carcinoma " Supportive Care in Cancer, Published online 08 February 2021

"Enhancing your ‘webside’ manner: communication during COVID‐19 " Trends in Urology and Men's Health, Published online 26 January 2021

"Completeness and accuracy of national cancer and death registration for outcome ascertainment in trials—an ovarian cancer exemplar " BMC Trials, Published online 25 January 2021

"The fallacy of large survival gains from lung metastasectomy in colorectal cancer " The Lancet, Correspondence, 9–15 January 2021

"The management of sexual dysfunction resulting from radiotherapy and androgen deprivation therapy to treat prostate cancer: A comparison of uro‐oncology practice according to disease stage " The International Journal of Clinical Practice, Published online 01 December 2020

"Communicating the oncotype DX® test results: A novel educational workshop for specialist breast care nurses " European Journal of Oncology Nursing, Letter to the Editor, First published online October 2020 for Volume 49, December 2020 Issue

"Pulmonary metastasectomy in colorectal cancer: health utility scored by EQ-5D-3L in a randomized controlled trial show no benefit from lung metastasectomy " Colorectal Disease, Open Access Article, Published online 01 October 2020

"The management of hot flushes for men treated with androgen deprivation therapy for prostate cancer: a survey of UK practice " Acupuncture in Medicine, Letter, Published online 07 October 2020

"5th ESO-ESMO international consensus guidelines for advanced breast cancer (ABC 5) " Annals of Oncology, Special Article, Published online 23 September 2020

"From Subject to Fellow Researcher: Reconceptualising Research Relationships to Safeguard Potentially Vulnerable Survey Participants " The American Journal of Bioethics, Published online 18 September 2020

"Using patient perspectives to inform communication training materials for health care professionals discussing BRCA mutation testing " Breast Cancer Research and Treatment, Open Access article, First published online August 2020

"The development and initial evaluation of the Diarrhoea Management Diary (DMD) in patients with metastatic breast cancer " Breast Cancer Research and Treatment, Open Access article, First published online July 2020

"Ovarian cancer symptoms, routes to diagnosis and survival – Population cohort study in the ‘no screen’ arm of the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS) " Gynecologic Oncology, Open Access article, First published online June 2020

"A systematic review of communication interventions to help healthcare professionals discuss genetic testing for breast cancer " Breast Cancer Research and Treatment, Open Access article, 23 June 2020

"The myth of pulmonary metastasectomy " British Journal of Cancer, Short communication, 16 June 2020

"Rapid response to: Colorectal cancer: summary of NICE guidance " The BMJ, Letter to the Editor, 12 June 2020

"Digital health for optimal supportive care in oncology: benefits, limits, and future perspectives " Supportive Care in Cancer Open Access article, 12 June 2020

"The affect of goserelin on the QoL of women having chemotherapy for EBC: Results from the OPTION trial " The Breast Open Access article first published online May 2020

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