Research Fellow
Email: bsms6156@sussex.ac.uk
Tel (UK): 07795 521952
Tel (International) +44 1273 95 521952
Dr Jo Middleton
Jo is a Member of the Faculty of Public Health of the Royal Colleges of Physicians of the United Kingdom. Since 2014, they have carried out mixed-methods health research at Brighton and Sussex Medical School alongside more operational public health work. Prior to this, they worked in the ambulance service and taught courses for Brighton & Sussex University Hospitals NHS Trust staff.
Their research and practice has been across diverse settings, but is always focused on enabling patient, community, and clinical voices to shape health systems improvement. This has ranged from improving diagnosis and treatment of infections in care homes, to assessing quality-of-life impacts of skin conditions, and clinic establishment for medically neglected populations. For outputs see: https://profiles.sussex.ac.uk/p262804-jo-middleton/publications
In 2026 Jo joined SHORE-C, at which they primarily contribute to the project: Enhancing patient-centred care in motor neuron disease by integrating a personalised care prediction model into patient decision aids and services (funder: Motor Neuron Disease Association).
- PACE-MND
The aim of this project is to promote personalised patient-centred care, support HCP practice, and enhance shared decision-making in MND. This will be achieved by gaining an in-depth understanding of i) the complex needs, attitudes, and preferences of plwMND, and their informal carers, towards personalised prognostic information about their care; ii) HCP practices and preferences for applying a prediction model in their clinical practice; and iii) adapting an existing patient decision aid supporting people make an informed decision around gastrostomy insertion.
