<--> SHORE-C: Sussex Health Outcomes Research and Education in Cancer


Torr B, Jones C, Choi S, Allen S, Kavanaugh G, Hamill M, Garrett A, MacMahon S, Loong L, Reay A, Yuan L, Petrizan M V, Monson K, Perry N, Fallowfield L, Jenkins V, Gold R, Taylor A, Gabe R, Wiggins J, Lucassen A, Manchanda R, Gandhi A, George A, Hubank M, Kemp Z, Evans G, Bremner S, Turnbull C A digital pathway for genetic testing in UK NHS patients with cancer: BRCA-DIRECT randomised study internal pilot, Journal of Medical Genetics, Published 22 July 2022

Fallowfield L J, Solis-Trapala I, Starkings R, May S, Matthews L, Eccles D, Evans G, Turnbull C, Crawford G, Jenkins V Talking about Risk, UncertaintieS of Testing IN Genetics (TRUSTING): development and evaluation of an educational programme for healthcare professionals about BRCA1 & BRCA2 testing, British Journal of Cancer, Published 17 June 2022

Di Maio M, Basch E, Denis F, Fallowfield L J, Ganz P A, Howell D, Kowalski D, Perrone F, Stover A M, Sundaresan P, Warrington L, Zhang L, Apostolidis K, Freeman-Daily J, Ripamonti C I, Santini D, on behalf of the ESMO Guidelines Committeee The role of patient-reported outcome measures in the continuum of cancer clinical care: ESMO Clinical Practice Guideline, Annals of Oncology, Published 21 April 2022

Amdal C D, Taylor K Kuliś D, Falk R S, Bottomley A, Arraras J I, Barte J H, Darlington A S, Hofsø K, Holzner B, Høyning Jørgensen N M, Mariano M P, Pe M, Piccinin C, Riccetti N, Schranz M, Wheelwright S, Bjordal K Health-related quality of life in patients with COVID-19; international development of a patient-reported outcome measure, Journal of Patient-Reported Outcomes, Published 26 March 2022

Fitzsimmons D, Wheelwright S Developing Cancer Quality of Life Assessment Tools, Handbook of Quality of Life in Cancer, Book Chapter, Published 26 March 2022

Glasspool R, Wheelwright S, Bolton V, Calman L, Cummings A, Elledge B, Foster R, Frankland J, Smith P, Stannard S, Turner J, Wright D, Foster C Modifiable pre-treatment factors are associated with quality of life in women with gynaecological cancers at diagnosis and one year later: Results from the HORIZONS UK national cohort study, Gynecologic Oncology, Published 26 March 2022

King L, Matthews S,Foster C, Starkings R, Holch P, Absolom K, Archer S,On behalf of the British Psychosocial Oncology Society Executive Committee A fascinating time to be involved with research’ Exploring the impact of COVID-19 on postgraduate psycho-oncology researchers, Psycho-Oncology, Published 19 January 2022

Fallowfield L J, Farewell D, Jones H, May S, Catt S, Starkings R, Jenkins V IMPARTER, Phase 1 of an intervention to improve patients’ understanding of gene expression profiling tests in breast cancer, Breast Cancer Research and Treatment, Published 04 January 2022


Rademaker C, Bhandary S, Harder H Knowledge, awareness, attitudes and screening practices towards breast and cervical cancer among women in Nepal: a scoping review, Journal of Public Health, Published 22 December 2021

Goyal A, Mann G B, Fallowfield L, Duley L, Reed M, Dodwell D, Coleman R E, Fakis A, Newcombe R, Jenkins V, Whitham D, Childs M, Whynes D, Keeley V, Ellis, I, Fairbrother P, Sadiq S, Monson K, Montgomery A, Tan W, Vale, L, Homer T, Badger H, Haines R H, Lewis M, Megias D, Nabi Z, Singh P, Caraman A, Miles E, on behalf of the POSNOC Trialists POSNOC—POsitive Sentinel NOde: adjuvant therapy alone versus adjuvant therapy plus Clearance or axillary radiotherapy: a randomised controlled trial of axillary treatment in women with early-stage breast cancer who have metastases in one or two sentinel nodes, BMJ Open, Accepted for Publication 03 November 2021

Thurtle D, Jenkins V, Freeman A, Pearson M, Recchia G, Tamer P, Leonard K, Pharoah P, Aning J, Madaan S, Goh C, Hilman S, McCracken S, Ilie, P c, Lazarowicz H, Gnanapragasam V Clinical Impact of the Predict Prostate Risk Communication Tool in Men Newly Diagnosed with Nonmetastatic Prostate Cancer: A Multicentre Randomised Controlled Trial, European Urology, Published online 04 September 2021

Williams N R, Treasure T, Macbeth F, Fallowfield L The Prospective Observational Cohort and the Nested Randomized Controlled Trial in the Pulmonary Metastasectomy in Colorectal Cancer (PulMiCC Study) Question the Reliance on Existing Evidence for the Magnitude of Benefit From Lung Metastasectomy, American Journal of Clinical Oncology, Published 01 September 2021

Treasure T, Farewell V, Macbeth F, Batchelor T, Milosevic M, King J, Zheng Y, Leonard P, Williams N R, Brew-Graves C, Morris E, Fallowfield L, The PulMiCC investigators Pulmonary Metastasectomy in Colorectal Cancer burden of care study: analysis of local treatments for lung metastases and systemic chemotherapy in 220 patients in the PulMiCC cohort, Colorectal Disease, Published 26 June 2021

Fallowfield L, Boyle F M, Travado L, Kiely B E, Jewell P, Aubel D, Cardoso F Gaps in Care and Support for Patients with Advanced Breast Cancer: A Report From the Advanced Breast Cancer Global Alliance, JCO Global Oncology, Published 22 June 2021

O'Shaughnessy J, Sousa S, Cruz, Fallowfield L, Auvinene P, Pulido C, Cvetanovic C, Wilks S, Ribeiro L, Burotto M, Klingbiel D, Messeri D, Alexandrou A, Trask P, Fredriksson P, Machackova Z, Stamatovic L, for the PHranceSCa study group Preference for the fixed-dose combination of pertuzumab and trastuzumab for subcutaneous injection in patients with HER2-positive early breast cancer (PHranceSCa): A randomised, open-label phase II study, European Journal of Cancer, Published 16 June 2021

Menon U, Gentry-Maharaj A, Burnell M, Singh N, Ryan A, Karpinsky C, Carlino G, Taylor J, Massingham S K, Raikou M, Kalsi J K, Woolas R, Manchanda R, Arora R, Casey L, Dawnay A, Dobbs S, Leeson S, Mould T, Seif M W, Sharma A, Williamson K, Liu Y, Fallowfield L, McGuire A J, Campbell S, Skates S J, Jacobs I J, Parmar M Ovarian cancer population screening and mortality after long-term follow-up in the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS): a randomised controlled trial, The Lancet, Published 12 May 2021

Starkings R, Shilling V, Jenkins V, Fallowfield L A structured review of quality of life in advanced and high‐risk cutaneous squamous cell carcinoma shows the need for more studies and better measures, Skin Health and Disease, Published 07 May 2021

Treasure T, Farewell V, Macbeth F, Batchelor T, Milošević M, King J, Zheng Y, Leonard P, Williams N R, Brew‐Graves C, Fallowfield L, The PulMiCC investigatorsThe Pulmonary Metastasectomy in Colorectal Cancer cohort study: Analysis of case selection, risk factors and survival in a prospective observational study of 512 patients, Colorectal Disease, Published 31 March 2021

Kinnaird W, Kirby M G, Mitra A, Davda R, Jenkins V, Payne H The management of sexual dysfunction resulting from radiotherapy and androgen deprivation therapy to treat prostate cancer: A comparison of uro‐oncology practice according to disease stage, International Journal of Clinical Practice, Published online 09 March 2021

Kalsi J, Gentry-Maharaj A, Ryan A, Singh N, Burnell M, Massingham S,Apostolidou S, Sharma A, Williamson K, Seif M, Mould T, Woolas R, Dobbs S, Leeson S, Fallowfield L, Skates S J, Parmar M, Campbell S, Jacobs I, McGuire A, Menon U Performance Characteristics of the Ultrasound Strategy during Incidence Screening in the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS), Cancers, Special Issue Gynaecological Cancers Risk: Breast Cancer, Ovarian Cancer and Endometrial Cancer, Published 18 February 2021

Starkings R, Shilling V, Fallowfield L An online review of informational sources for advanced or high-risk cutaneous squamous cell carcinoma, Supportive Care in Cancer, Published online 08 February 2021, Open Access

Fallowfield L Enhancing your ‘webside’ manner: communication during COVID‐19, Trends in Urology and Men's Health, Published online 26 January 2021

Kalsi J K, Ryan A, Gentry-Maharaj A, Margolin-Crump D, Singh N, Burnell M, Benjamin E, Apostolidou S, Habib M, Massingham S, Karpinskyj C, Woolas R, Widschwendter M, Fallowfield L, Campbell S, Skates S, McGuire A, Parmar M, Jacobs I, Menon U Completeness and accuracy of national cancer and death registration for outcome ascertainment in trials—an ovarian cancer exemplar, BMC Trials, Published online 25 January 2021

Treasure T, Macbeth F, Farewell V, Williams N R, Fallowfield L The fallacy of large survival gains from lung metastasectomy in colorectal cancer, The Lancet, Correspondence, 9–15 January 2021


Kinnaird W, Kirby M G, Mitra A, Davda R, Jenkins V, Payne H The management of sexual dysfunction resulting from radiotherapy and androgen deprivation therapy to treat prostate cancer: A comparison of uro‐oncology practice according to disease stage, The International Journal of Clinical Practice, Published online 01 December 2020

Fallowfield L, May S, Jenkins V Communicating the Oncotype DX® test results: A novel educational workshop for specialist breast care nurses, European Journal of Oncology Nursing, Letter to the Editor, Published online October 2020

Brew-Graves C, Farewell V, Monson K, Milošević M, Williams N R, Morris E, Macbeth F, Treasure T, Fallowfield L Pulmonary metastasectomy in colorectal cancer: health utility scores by EQ-5D-3L in a randomized controlled trial shown no benefit from lung metastasectomy, Colorectal Disease, Open Access Article, Published online 01 October 2020

Kinnaird W, Mehta A, Guo C, Payne H, Jenkins V, Catt S The management of hot flushes for men treated with androgen deprivation therapy for prostate cancer: a survey of UK practice, Acupuncture in Medicine, Letter, Published online 07 October 2020

Cardoso F, Paluch-Shimon S, Senkus E, Curigliano G, Aapro M S, André F, Barrios C H, Bergh J, Bhattacharyya G S, Biganzoli L, Boyle F, Cardoso M -J, Carey L A, Cortés J, El Saghir N S, Elzayat M, Eniu A, Fallowfield L, Francis P A, Gelmon K, Gligorov J, Haidinger R, Harbeck N, Hu X, Kaufman B, Kaur R, Kiely B E, Kim S -B, Lin N U, Mertz S A, Neciosup S, Offersen B V, Ohno S, Pagani O, Prat A, Penault-Llorca F, Rugo H S, Sledge G W, Thomssen C, Vorobiof D A, Wiseman T, Xu B, Norton L, Costa A, Winer E P 5th ESO-ESMO international consensus guidelines for advanced breast cancer (ABC 5), Annals of Oncology, Special Article, published online 23 September 2020

West-Oram P, Brooks C, Jenkins V From Subject to Fellow Researcher: Reconceptualising Research Relationships to Safeguard Potentially Vulnerable Survey Participants, The American Journal of Bioethics, pp 72-74, Published online 18 September 2020

Shilling V, Catt S, Jenkins V, Fallowfield L Using patient perspectives to inform communication training materials for health care professionals discussing BRCA mutation testing, Breast Cancer Research and Treatment, August 18, 2020. Open Access article published online August 2020

Harder H, Shilling V, May S, Cella D, Schmid P, Fallowfield L The development and initial evaluation of the Diarrhoea Management Diary (DMD) in patients with metastatic breast cancer, Breast Cancer Research and Treatment, 183(3), pp 629-638, 27 July 2020. Open Access article, first published online July 2020

Dilley J, Burnell M, Gentry-Maharaj A, Ryan A, Neophytou C, Apostolidou S, Karpinskyj C, Kalsi J, Mould T, Woolas R, Singh N, Widschwendter M, Fallowfield L, Campbell S, Skates S J, McGuire A, Parmar M, Jacobs I, Menon U Ovarian cancer symptoms, routes to diagnosis and survival – Population cohort study in the ‘no screen’ arm of the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS), Gynecologic Oncology, Volume 158, Issue 2, pp 316-322, August 01, 2020. Open Access article published online June 17, 2020

Harder H, Shilling V, May S, Cella D, Schmid P, Fallowfield L The development and initial evaluation of the Diarrhoea Management Diary (DMD) in patients with metastatic breast cancer, Breast Cancer Research and Treatment, 183(3), pp 629-638, 27 July 2020. Open Access article, first published online July 2020

Macbeth F, Fallowfield L The myth of pulmonary metastasectomy, British Journal of Cancer, Short commnication, 16 June 2020

Starkings R, Shilling V, Jenkins V, Fallowfield L A systematic review of communication interventions to help healthcare professionals discuss genetic testing for breast cancer, Breast Cancer Research and Treatment, Open Access article, 23 June 2020

Fallowfield L, Macbeth F, Treasure T Rapid Response: Re: Colorectal cancer: summary of NICE guidance, The BMJ, Letter to the Editor 12 June 2020

Aapro M, Bossi P, Dasari A, Fallowfield L, Gascón P, Geller M, Jordan K, Kim J, Martin K, Porzig S Digital health for optimal supportive care in oncology: benefits, limits, and future perspectives, Supportive Care in Cancer, Open Access article, June 2020

Leonard R, Yellowlees A, Mansi J, Fallowfield L, Jenkins V The affect of goserelin on the QoL of women having chemotherapy for EBC: Results from the OPTION trial, The Breast, Open Access article, May 2020


Kandiyali R, Hawton A, Cabral C, Mytton J, Shilling V, Morris C, Ingram J Working with Patients and Members of the Public: Informing Health Economics in Child Health Research PharmacoEconomics-Open, Vol 3, pp133-141, first published online 15th October 2019 ahead of print.

Treasure T, Farewell V, Macbeth F, Monson K, Williams N R, Brew-Graves C, Lees B, Grigg O, Fallowfield L & PulMiCC Trial Group Pulmonary Metastasectomy versus Continued Active Monitoring in Colorectal Cancer (PulMiCC): a multicentre randomised clinical trial Trials, 20, Article number 718, Open Access article first published online 12th December 2019 ahead of print.

Thurtle D R, Jenkins V, Pharoah P D, Gnanapragasam V J Understanding of prognosis in non-metastatic prostate cancer: a randomised comparative study of clinician estimates measured against the PREDICT prostate prognostic model British Journal of Cancer, 16 September 2019

Starkings R, Jenkins V, Shilling V Insights into the use of social comparisons within an advanced cancer setting Journal of Psychosocial Oncology Research and Practice. First online 4 September 2019

Catt S, Matthews L, May S, Payne H, Mason M, Jenkins V Patients' and partners' views of care and treatment provided for metastatic castrate-resistant prostate cancer in the UK European Journal of Cancer Care. First online 01 September 2019

Harder H, Starkings R, Fallowfield L, Menon U, Jacobs I, Jenkins V on behalf of the UKCTOCS trialists Sexual functioning in 4,418 postmenopausal women participating in UKCTOCS: a qualitative free-text analysis Menopause. First online 10 August 2019

Fallowfield L, Solis-Trapala I, Starkings R, Catt S, May S, Jenkins V Talking about risk in the context of genomic tests (TARGET): development and evaluation of an educational program for clinicians Breast Cancer Research and Treatment. First online 14 June 2019

Shilling V, Starkings R, Jenkins V, Cella D, Fallowfield L Development and validation of the caregiver roles and responsibilities in cancer caregivers Quality of Life Research First Online 19 March 2019

Delaloge S, Cella D, Ye Y, Buyse M, Chan A, Barrios C H, Holmes F A, Mansi J, Iwata J, Ejlertsen B, Moy B, Chia S K L, Gnant M, Smichkoska S, Ciceniene A, Martinez N, Filipović S, Efrat Ben-Baruch N, Joy A A, Langkjer S T, Senecal F, de Boer R H, Moran S, Yao B, Bryce R, Auerbach A, Fallowfield L, Martin M Effects of Neratinib on Health-Related Quality-of-Life in Women with HER2-Positive Early-Stage Breast Cancer: Longitudinal Analyses from the Randomized Phase III ExteNET Trial Annals of Oncology, Oxford University Press, Published 23 January 2019

Lifford K J, Edwards A, Burton M, Harder H, Armitage F, Morgan J L, Caldon L, Balachandran K, Ring A, Collins K, Reed M, Wyld L, Brain K Efficient development and usability testing of decision support interventions for older women with breast cancer Patient Preference and Adherence, Volume 13, Dove Press. First Online 14 January 2019


2018 Sebastian Hinde, Chloi Theriou, Shirley May, Lucy Matthews, Amy Arbon, Lesley Fallowfield, David Bloomfield The cost-effectiveness of EndoPredict to inform adjuvant chemotherapy decisions in early breast cancer Health Policy and Technology. First Online 24 December 2018

2018 V. Jenkins, I. Solis-Trapala, H. Payne, M. Mason, L. Fallowfield, S. May, L. Matthews, S. Catt Treatment experiences, information needs, pain and quality of life in men with metastatic castrate-resistant prostate cancer: results from the EXTREQOL study Clinical Oncology. First Online 22 November 2018

2018 Fallowfield, L.J. Quality of life assessment using patient reported outcome (PRO) measures - still a Cinderella outcome? Annals of Oncology, 16 November 2018. .. Download the pdf

2018 Shilling, V. Starkings, R. Jenkins, V. Cella, D. Fallowfield, L. Development and validation of the patient roles and responsibilities scale in cancer patients Quality of Life Research. First Online 26 July 2018

2018 F. Cardoso, E. Senkus, A. Costa, E. Papadopoulos, M. Aapro, F. André, N. Harbeck, B. Aguilar Lopez, C. H. Barrios, J. Bergh, L. Biganzoli, C. B. Boers-Doets, M. J. Cardoso, L. A. Carey, J. Cortés, G. Curigliano, V. Diéras, N. S. El Saghir, A. Eniu, L. Fallowfield, P. A. Francis, K. Gelmon, S. R. D. Johnston, B. Kaufman, S. Koppikar, I. E. Krop, M. Mayer, G. Nakigudde, B. V. Offersen, S. Ohno, O. Pagani, S. Paluch-Shimon, F. Penault-Llorca, A. Prat, H. S. Rugo, G. W. Sledge, D. Spence, C. Thomssen, D. A. Vorobiof, B. Xu, L. Norton & E. P. Winer 4th ESO–ESMO International Consensus Guidelines for Advanced Breast Cancer (ABC 4) Download from

2018 Jenkins V, Farewell V, May S, Catt S, Matthews L, Shilling V, Dickson J, Simcock R, Fallowfield L Do drugs offering only PFS maintain quality of life sufficiently from a patient’s perspective? Results from AVALPROFS (Assessing the ‘VALue’ to patients of PROgression Free Survival) study. Supportive Care in Cancer. 15 May 2018

2018 Fallowfield LJ, Jenkins V, "Psychological Issues in Breast Cancer" in The Sixth Edition of The Companion to Specialist Surgery published by Elsevier.

2018 Catt, SL, Ahmad S, Collyer J, Hardwick L, Shah N, Winchester L Quality of life and communication in orthognathic treatment. Journal of Orthodontics. Published online 11 April 2018

2018 Catt, S, Sheward J, Sheward E, Harder H Cancer survivors’ experiences of a community-based cancer-specific exercise programme: results of an exploratory survey. Supportive Care in Cancer. Online first 05 April 2018

2018 Fallowfield L, Matthews L, May S, Bloomfield D Enhancing decision-making about adjuvant chemotherapy in early breast cancer following EndoPredict testing. Psycho-Oncology. Online first 15 Feb 2018

2018 Jenkins V, Payne H, Mason M, May S, Matthews L, Catt S. EXTREQOL Identifies Ongoing Challenges in Maximising Quality of Survival in Men with Metastatic Castrate-Resistant Prostate Cancer (Editorial). Clinical Oncology. 2018. Online first. 16 Feb 2018

2018 Howell A, Ashcroft L, Fallowfield L, Eccles D, Eeles R, Ward A, Brentnall A, Dowsett M, Cuzick J, Greenhalgh R, Boggis C, Motion J, Sergeant J, Adams J, Evans D RAZOR: A phase II open randomized trial of screening plus goserelin and raloxifene versus screening alone in premenopausal women at increased risk of breast cancer.. Cancer Epidemiology Biomarkers and Prevention. January 2018.

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