UK Survey measuring informational needs and quality of life for people LIving with Metastatic Breast CancER (LIMBER)
Co Investigators: Professor Carlo Palmieri, Medical Oncologist, Liverpool; Mrs Jo Taylor, Founder of Alter Breast Cancer Diagnosis UK and METUPUK
Data Manager: Shirley May
The primary aim of LIMBER is to produce an online survey that will provide a UK perspective of information and support needs for individuals living with advanced breast cancer (ABC).
An explicit aim of the LIMBER project is to gain insights that will be used to inform the content of supportive educational materials for patients, their formal and informal carers. The topics investigated will include areas that are not normally the focus of clinical studies. Questions will be developed and refined following input from our patient representatives, and the investigators.
The findings will be disseminated through the charity, Make2ndsCount, and could be used to develop materials and resources, including communicatiion skills training interventions.