SHORE-C COVID-19 DIARY

28 May 2020:     SHORE-C'S Dr Helena Harder presented 'bWell', a mobile app for arm and shoulder exercises after breast cancer, at this month's virtual ESMO conference. Download her presentation here.

The app is available in the App Store for FREE. It is ORCHA approved and listed in their COVID-19 support app library. (Type 'breast cancer' in the search box.)

bWell comes with a 3-stage exercise program to support patients in the recovery after surgery and radiotherapy and help them to restore arm and shoulder movement and mobility. The tool helps patients to keep on schedule with calendar alerts and includes instructional videos that show how to perform each exercise. bWell tracks completed daily exercise sessions and overall progress in real time. Other features include written instructions, reminders and logs for the post-operative exercises, educational content and links to breast cancer services.

07 May 2020:     Memojis help frightened children facing nurses in PPE ..... Listen to Carrie's and Lesley's radio interview here - it starts 1hr 18 mins in.

Carrie Reeve, Community Children’s Nurse Specialist, Surrey.

We have developed a series of stickers to help staff wearing personal protective equipment (PPE) to communicate with children while wearing masks and visors. We developed the stickers in response to a request from Dame Lesley's daughter, Carrie Reeve, who is a Community Children's Nurse Specialist in Surrey. Carrie looks after seriously ill and chronically sick children, and was worried that not only might her face mask and visor frighten some of the children but that they could not see her usual smiley or empathic face when they felt sad.

Dame Lesley says: “Research shows that it isn’t just the words one uses that matters – facial expressions and non-verbal communication are really important and can be very difficult to achieve when wearing PPE.” Our team has created a series of ‘memojis’ which Carrie can stick to her mask or visor as a communication aid.

Read more ...

27 April 2020:     WORKING AND YOUR WELLBEING

Earlier this month, Prof Dame Lesley Fallowfield wrote an article for inPulse, the Brighton and Sussex Medical School (BSMS) internal bulletin. In it, she shares useful tips on how all of us at SHORE-C are working mainly from home, but keeping in touch with each other in these times.

"Work fulfils a major part of our lives and while we all experience periods of boredom, frustration, overload or irritation with it, the sudden and significant changes forced upon us by situations such as the current Coronavirus pandemic does make one realise the valuable contribution that work plays. Although we have the advantages of broadband and other technologies to help us conduct some work from home, Zoom, Teams, Skype or whatever cannot really replace the easy, fortuitous banter in the coffee room or spontaneous sharing of ideas and resolution of problems that physically being together in one space permits. I really miss my colleagues but I think that our small team SHORE-C has made the best of a difficult situation which will hopefully help us hit the ground running when and if things recover. I am sharing with readers of inPulse what we did and have set up in the hope that it might help others." See the whole article

15 April 2020:     MANAGING STRESS IN THE TIME OF COVID-19

Prof Dame Lesley Fallowfield's video about managing stress and anxiety
Professor Dame Lesley Fallowfield held a Q&A session with BCRF's Margaret Flowers about how patients can manage stress and anxiety during these difficult times with Covid-19. She offers advice to newly-diagnosed patients, patients whose treatment has been stopped or paused, and patients with advanced diseased. She talks about hospital visits curtailed, compromises to immune systems, and how patients can be missing reassurances from health care professionals. For reducing stress, she advocates yoga, meditation, exercise, listening to music, relaxing by an open window, a sensible diet, sleep, social media connections. Informal caregivers or family members can also help to keep spirits up, not least by allowing the expression of fears and worries, and trusting the advice of health care providers.

03 April 2020:     YOGA

If only we could be there ...

yoga class on beach

 

... but head over to our yoga exercise page for our guide to simple yoga exercises.

Yoga cartoonYou will find some yoga exercises to calm and cool you in these stressful times. SHORE-C developed these gentle yoga exercises for one of our previous studies, "Gentle Yoga Exercises for women following breast cancer surgery". They could be useful for all of us.

23 March 2020:     URGENT NEWS FROM SHORE-C STAFF

SHORE-C regrets that due to the COVID-19 outbreak:-

  1. TRUSTING workshops have been postponed. New dates will hopefully be announced June 2020.
  2. Patients currently enrolled in clinical trials will still be sent follow-up questionnaires.
  3. Researchers will continue to conduct home interviews by telephone.
  4. Emails will still be monitored by all SHORE-C researchers.

Please note: Due to COVID-19, we are remote working but responding to emails. SHORE-C office telephones are not being redirected. For email addresses, go to our Staff page. Thank you.

We hope that all healthcare professionals, researchers, patients and their families stay well during this troubling period.

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