The central aim of Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) is to conduct pragmatic research in psychosocial oncology.
Our work includes:
Measuring Quality of Life (QoL) in clinical trials of cancer therapy
Designing Patient Reported Outcome (PRO) measures
Developing and evaluating interventions to help patients deal with treatment side-effects
Producing educational materials and helping to improve communication skills of Cancer Healthcare Professionals
Therapeutic aims of drugs offering only progression-free survival are misunderstood by patients, and oncologists may be overly optimistic about likely benefits. Read more
Ovarian Cancer in Nature Reviews Disease Primers (restricted access) Read more
No man’s land: information needs and resources of men with metastatic castrate resistant prostate cancer. Read more
Patient-reported outcomes in metastatic castrate-resistant prostate cancer.
Essay 4. Patient-reported outcome measures and the evaluation of services in Challenges, solutions and future directions in the evaluation of service innovations in health care and public health.
Questioning assent: how are children's views included as families make decisions about clinical trials?
A feasibility study exploring the role of pre-operative assessment when examining the mechanism of 'chemo-brain' in breast cancer patients.
Stress levels amongst nurses caring for women with breast cancer: results from a survey of nurses on the south east coast.
Patient-reported outcome measures for cancer caregivers: a systematic review.
Second international consensus guidelines for breast cancer in young women (BCY2).
Reply to P.F. Pinsky, C.P. Crum, and M.W. McIntosh et al.
Overtreatment of Low-Grade Ductal Carcinoma In Situ.
NEW Pilot Workshops
Talking with Patients about Metastatic Bone Disease (MBD)
Facilitator: Professor Dame Lesley Fallowfield
Monday September 19th (12.30pm to 5.30pm) – Prostate Cancer
Tuesday September 20th (9am to 1pm) – Breast Cancer
Venue to be confirmed: RNLI College West Quay Road, Poole BH15 1HZ
The pilot workshop is aimed at clinicians and nurses treating and caring for breast and/or prostate cancer patients with Metastatic Bone Disease (MBD). Participants can attend one or both half days (CMEs applied for).
The workshop uses a set of 5 newly created educational videos illustrating different MBD consultations. The scenarios do not show the “right” or “wrong” way to discuss MBD but are used as “triggers” to engage participants in discussion. The groups are small with a maximum of 10 delegates and facilitated by Professor Dame Lesley Fallowfield.Attendance is free as the course costs are covered by charitable funds but travel expenses cannot be reimbursed. Places are limited so for more information, or, to register please email firstname.lastname@example.org