The central aim of Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) is to conduct pragmatic research in psychosocial oncology. Our work includes:
Measuring Quality of Life (QoL) in clinical trials of cancer therapy
Designing Patient Reported Outcome (PRO) measures
Developing and evaluating interventions to help patients deal with treatment side-effects
Producing educational materials and helping to improve communication skills of Cancer Healthcare Professionals
“Patient-Centred Decision Making: Communication Challenges” Chapter 4 in Problem Solving in Patient-Centred and Integrated Cancer Care published by EBN Health Books
"Efficacy and safety of subcutaneous trastuzumab and intravenous trastuzumab as part of adjuvant therapy for HER2-positive early breast cancer: final analysis of the randomised, two-cohort PrefHer study" European Journal of Cancer
"Quality of Survival: a new concept framework to assess the quality of prolonged life in cancer" Expert Review of Quality of Life in Cancer Care
"Self-reported sexual health: Breast cancer survivors compared to women from the general population – an observational study" BioMed Central
"The Cost-effectiveness of Screening for Ovarian Cancer: Results from the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS)" The British Journal of Cancer
"A new paradigm or a misrepresentation of current communication research and teaching." Letter to the Editor of Medical Education
"A user-centred approach to developing bWell, a mobile app for arm and shoulder exercises after breast cancer treatment." Journal of Cancer Survivorship
"The pervasive nature of uncertainty—a qualitative study of patients with advanced cancer and their informal caregivers." Journal of Cancer Survivorship
"Switching between intravenous and subcutaneous trastuzumab: Safety results from the PrefHer trial". The Breast
"Long-Term Follow-Up of the Intergroup Exemestane Study." Journal of Clinical Oncology
"The effect of ovarian cancer screening on sexual activity and functioning: results from the UK collaborative trial of ovarian cancer screening RCT" in British Journal of Cancer (restricted access/subscription required).
Chapter 18 “The Effects of Breast Cancer Treatments on Cognition” in Alistair Ring & Marina Parton (Eds) Breast Cancer Survivorship Springer
Too hot, too cold or can we get it just right? What emotional distance should oncologists keep from their patients? Read more
Patient-reported outcome measures of the impact of cancer on patients’ everyday lives: a systematic review. Read more
Confusion Over Differences in Registration and Randomization Criteria for the LORIS (Low-Risk DCIS) Trial. Read more
3rd ESO-ESMO international consensus guidelines for Advanced Breast Cancer (ABC3). Simultaneously published in Annals of Oncology and The Breast. Read more
Final results of the TANIA randomised phase III trial of bevacizumab after progression on first-line bevacizumab therapy for HER2-negative locally recurrent/metastatic breast cancer. Read more
Sexual dysfunction in breast cancer survivors: cross-cultural adaptation of the Sexual Activity Questionnaire for use in Portugal. Read more
SHORE-C at ISPOR
Dr Val Shilling presented a poster at the 20th annual European Congress of International Society for Pharmacoeconomics and Outcomes Research in Glasgow on 8th November 2017.
The poster titled “Evaluation and validation of the PROACT measures for cancer patients and informal caregivers” describes the development of two new scales measuring broad life impacts of cancer and cancer treatment for patients and informal caregivers.
For most women, being diagnosed with breast cancer causes significant emotional stress. The pressure of making important decisions about treatments, which often come with distressing side effects, can increase anxiety. Dame Lesley Fallowfield discussed her research into the psychological impact of breast cancer and showed how doctors can minimise stress by improving communication around risk and uncertainty of test results and recommended treatments.
An audio recording of Dame Lesley's talk is available on the Best of the British Festival of Science page on the BSMS website.
SHORE-C at BPOS
Best poster prize for Lucy Matthews for her AVALPROFS poster. What a great end to a great conference!
PROACT 'lucky' construct poster at BPOS
SHORE-C and CU Fitter
Sue Catt explaining the CUFitter poster at the BPOS conference.
SHORE-C researchers are collaborating with Cancer United, a cancer patient support group based in Littlehampton.