The central aim of Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) is to conduct pragmatic research in psychosocial oncology. Our work includes:
Measuring Quality of Life (QoL) in clinical trials of cancer therapy
Designing Patient Reported Outcome (PRO) measures
Developing and evaluating interventions to help patients deal with treatment side-effects
Producing educational materials and helping to improve communication skills of Cancer Healthcare Professionals
"A new paradigm or a misrepresentation of current communication research and teaching." Letter to the Editor of Medical Education
"A user-centred approach to developing bWell, a mobile app for arm and shoulder exercises after breast cancer treatment." Journal of Cancer Survivorship
"The pervasive nature of uncertainty—a qualitative study of patients with advanced cancer and their informal caregivers." Journal of Cancer Survivorship
"Switching between intravenous and subcutaneous trastuzumab: Safety results from the PrefHer trial". The Breast
"Long-Term Follow-Up of the Intergroup Exemestane Study." Journal of Clinical Oncology
"The effect of ovarian cancer screening on sexual activity and functioning: results from the UK collaborative trial of ovarian cancer screening RCT" in British Journal of Cancer (restricted access/subscription required).
Chapter 18 “The Effects of Breast Cancer Treatments on Cognition” in Alistair Ring & Marina Parton (Eds) Breast Cancer Survivorship Springer
Too hot, too cold or can we get it just right? What emotional distance should oncologists keep from their patients? Read more
Patient-reported outcome measures of the impact of cancer on patients’ everyday lives: a systematic review. Read more
Confusion Over Differences in Registration and Randomization Criteria for the LORIS (Low-Risk DCIS) Trial. Read more
3rd ESO-ESMO international consensus guidelines for Advanced Breast Cancer (ABC3). Simultaneously published in Annals of Oncology and The Breast. Read more
Final results of the TANIA randomised phase III trial of bevacizumab after progression on first-line bevacizumab therapy for HER2-negative locally recurrent/metastatic breast cancer. Read more
Sexual dysfunction in breast cancer survivors: cross-cultural adaptation of the Sexual Activity Questionnaire for use in Portugal. Read more
Endocrine Therapy for Hormone Receptor–Positive Metastatic Breast Cancer: American Society of Clinical Oncology Guidelines Read more
Therapeutic aims of drugs offering only progression-free survival are
misunderstood by patients, and oncologists may be overly optimistic about likely benefits. Read more
Ovarian Cancer in Nature Reviews Disease Primers (restricted access) Read more
For most women, being diagnosed with breast cancer causes significant emotional stress. The pressure of making important decisions about treatments, which often come with distressing side effects, can increase anxiety. Dame Lesley Fallowfield discussed her research into the psychological impact of breast cancer and showed how doctors can minimise stress by improving communication around risk and uncertainty of test results and recommended treatments. Audio recording to follow.
SHORE-C at BPOS
Best poster prize for Lucy Matthews for her AVALPROFS poster. What a great end to a great conference!
PROACT 'lucky' construct poster at BPOS
SHORE-C and CU Fitter
Sue Catt explaining the CUFitter poster at the BPOS conference.
SHORE-C researchers are collaborating with Cancer United, a cancer patient support group based in Littlehampton.
Their CU Fitter initiative was recently covered by ITV Meridian news on 29th January 2017. Click here to view the ITV Meridian News item
PATIENT REPORTED OUTCOMES
Dame Lesley is quoted in a recent Medicine Matters Oncology online article titled 'The time is right for Patient Reported Outcomes'
Cancer Survivorship Conference poster presentations
Professor Dame Lesley Fallowfield and Dr Val Shilling presented posters at the ASCO Cancer Survivorship Symposium: Advancing Care & Research in San Diego California on 28th January 2017. To view the posters, click on the titles below: