The central aim of Sussex Health Outcomes, Research & Education in Cancer (SHORE-C) is to conduct pragmatic research in psychosocial oncology. Our work includes:
Measuring Quality of Life (QoL) in clinical trials of cancer therapy
Designing Patient Reported Outcome (PRO) measures
Developing and evaluating interventions to help patients deal with treatment side-effects
Producing educational materials and helping to improve communication skills of Cancer Healthcare Professionals
"Development and validation of the patient roles and responsibilities scale in cancer patients " Quality of Life Research
"Do drugs offering only PFS maintain quality of life sufficiently from a patient’s perspective? Results from AVALPROFS (Assessing the ‘VALue’ to patients of PROgression Free Survival) study " Supportive Care in Cancer
"Psychological Issues in Breast Cancer" in The Sixth Edition of The Companion to Specialist Surgery published by Elsevier
"RAZOR: A phase II open randomized trial of screening plus goserelin and raloxifene versus screening alone in premenopausal women at increased risk of breast cancer " Cancer Epidemiology Biomarkers and Prevention
"Quality of life and communication in orthognathic treatment" Journal of Orthodontics
"Cancer survivors’ experiences of a community-based cancer-specific exercise programme: results of an exploratory survey" Supportive Care in Cancer
"Enhancing decision-making about adjuvant chemotherapy in early breast cancer following EndoPredict testing" published by Psycho-Oncology
"EXTREQOL Identifies Ongoing Challenges in Maximising Quality of Survival in Men with Metastatic Castrate-Resistant Prostate Cancer" published by Clinical Oncology
“Patient-Centred Decision Making: Communication Challenges” Chapter 4 in Problem Solving in Patient-Centred and Integrated Cancer Care published by EBN Health Books
"Efficacy and safety of subcutaneous trastuzumab and intravenous trastuzumab as part of adjuvant therapy for HER2-positive early breast cancer: final analysis of the randomised, two-cohort PrefHer study" European Journal of Cancer
"Quality of Survival: a new concept framework to assess the quality of prolonged life in cancer" Expert Review of Quality of Life in Cancer Care
"Self-reported sexual health: Breast cancer survivors compared to women from the general population – an observational study" BioMed Central
"The Cost-effectiveness of Screening for Ovarian Cancer: Results from the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS)" The British Journal of Cancer
"A new paradigm or a misrepresentation of current communication research and teaching." Letter to the Editor of Medical Education
"A user-centred approach to developing bWell, a mobile app for arm and shoulder exercises after breast cancer treatment." Journal of Cancer Survivorship
"The pervasive nature of uncertainty—a qualitative study of patients with advanced cancer and their informal caregivers." Journal of Cancer Survivorship
"Switching between intravenous and subcutaneous trastuzumab: Safety results from the PrefHer trial". The Breast
"Long-Term Follow-Up of the Intergroup Exemestane Study." Journal of Clinical Oncology
"The effect of ovarian cancer screening on sexual activity and functioning: results from the UK collaborative trial of ovarian cancer screening RCT" in British Journal of Cancer (restricted access/subscription required).
Chapter 18 “The Effects of Breast Cancer Treatments on Cognition” in Alistair Ring & Marina Parton (Eds) Breast Cancer Survivorship Springer
Too hot, too cold or can we get it just right? What emotional distance should oncologists keep from their patients? Read more
Patient-reported outcome measures of the impact of cancer on patients’ everyday lives: a systematic review. Read more
Confusion Over Differences in Registration and Randomization Criteria for the LORIS (Low-Risk DCIS) Trial. Read more
3rd ESO-ESMO international consensus guidelines for Advanced Breast Cancer (ABC3). Simultaneously published in Annals of Oncology and The Breast. Read more
Final results of the TANIA randomised phase III trial of bevacizumab after progression on first-line bevacizumab therapy for HER2-negative locally recurrent/metastatic breast cancer. Read more
Sexual dysfunction in breast cancer survivors: cross-cultural adaptation of the Sexual Activity Questionnaire for use in Portugal. Read more
Congratulations to Professor Val Jenkins!
Da iawn!! Our very own Dr Valerie Jenkins has been made a professor - the Dame says 'Richly deserved and well overdue!!!'
Umberto Veronesi Award for Prof Dame Lesley Fallowfield
Dame Lesley will be awarded the Umberto Veronesi Foundation prize at next year's St Gallen International Breast Cancer Conference, which will take place in Austria in March 2019. Prof Veronesi, who died in 2016 aged 90, contributed enormously to the research showing that all women with breast cancer did not necessarily need to have a mastectomy. Prof Dame Fallowfield is being given the award in recognition of her leading role in advancing science and care of breast cancer patients. Commenting on the award, she said: "I am absolutely thrilled and immensely proud that the Awards Committee have nominated me, a psycho-oncologist rather than a surgeon, for this prestigious award. I knew Prof Veronesi well and he was always very kind and encouraging to me in the early stages of my career. I am sure that the title of my talk 'how heretical thoughts and challenging orthodoxy improves breast cancer care' would make him smile."
Dr Val Jenkins and the Dame busy making a new patient information film with Prof Denis Talbot, Consultant medical oncologist at Oxford.
ECP Video - a great film production team!
Four of us went to BPOS (British Psychosocial Oncology Society) annual conference this year. Our director, Professor Dame Lesley Fallowfield, was awarded a BPOS Lifetime Membership Award. Lucy Matthews gave a talk on ENDOPREDICT and Rachel Starking displayed our PEPSIN poster. You can read more about the conference here.
Dr Helena Harder, Research Fellow at SHORE-C, in the news, telling us about her current research. Spotlight on Dr Helena Harder
Welcome to our new member of staff
SHORE-C is sorry to see the well-earned retirement of Tracy Woodcock, but welcomes Luke Murphy, our new Department Assistant to the team.
Dame Lesley and Dr Val Jenkins at the San Antonio Breast Cancer Symposium in December
For most women, being diagnosed with breast cancer causes significant emotional stress. The pressure of making important decisions about treatments, which often come with distressing side effects, can increase anxiety. Dame Lesley Fallowfield discussed her research into the psychological impact of breast cancer and showed how doctors can minimise stress by improving communication around risk and uncertainty of test results and recommended treatments.
An audio recording of Dame Lesley's talk is available on the Best of the British Festival of Science page on the BSMS website.